Haemoglobin H disease

Information

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People with Haemoglobin H disease are anaemic; their haemoglobin level is considerably lower than normal. All the same, most people with Haemoglobin H disease are quite well; they can work and have children like other people and do not need any special treatment.

Most couples who could have children with Haemoglobin H disease are not really worried. They usually ask to have the baby tested as soon as it is born, so that they can know the situation. If the baby does have Hb H disease, the parents are advised to attend a regular clinic a few times a year, just to check that the baby is growing well and make sure that there are no additional problems.