The charity provides a counselling support service for individuals and families affected by thalassaemia. We listen, guide and signpost to the appropriate avenues of support.
The charity produces a broad range of information for people living with thalassaemia and their families. These range from in-depth medical and support guides to short booklets, online resources via the website and educational DVDs. They cover all the issues that families face, for example, information for schools about how to support children with thalassaemia.
The charity produces a quarterly magazine with health and lifestyle advice for patients and healthcare professionals. An email edition is sent out to all of our members, university research teams and haematology departments within hospitals. (We also print a number of copies).
We present at training days for medical staff at Kings College Hospital to help fully understand the condition.