Publications
Thalassaemia is a complex condition and here in the library you can download specific information on fertility, endocrine and other issues including National Standards and TIF publications. Some of our thalassaemia information is available in various languages.
Hot Topics
- Asian Awareness
- Emergency Management of Thalassaemia
- Thalassaemia information in your language
- Standards for the Clinical Care of Children & Adults Living with Thalassaemia in the UK (4th Edition -2023)
- Screening tests for you and your baby | NHS (youtube.com)
- It's in our genes
- Thalassaemia Matters
Education & Employment Resources
Leaflets & Publications
- My baby has thalassaemia
- What is thalassaemia trait
- Guide to living with thalassaemia
- Thalassaemia. Your Life. Your Choice
- Information for people who carry Alpha thalassaemia
- For people who carry Alpha zero thalassaemia
- What you need to know about Beta thalassaemia
- Information for carriers of Beta thalassaemia
- Update support groups PGD final 2014
Guidelines, Standards & Awareness
- Standards for the Clinical Care of Children and Adults Living with Thalassaemia in the UK (4th Edition -2023)
- Asian Awareness
- Emergency Management of Thalassaemia
- A guide for the Haemoglobinopathy nurse
- Clinical management of Non Transfusion Dependent Thal (NTDT)
- Routine investigations in the management of thalassaemia
- Prevention of Thal & other Haemoglobin Disorders – Volume 1
- Prevention of Thal & other Haemoglobin Disorders – Volume 2
Videos
- Exploring the role of nutrition in Thalassaemia (youtube.com)
- Food for Thought Workshop 2 Endocrine problems (youtube.com)
- Thalassaemia Major: Having a blood transfusion at RMCH
UKTS is very excited to be collaborating with Jules Ventriloquist to create an educational series for children about thalassaemia. This is the first of its kind, so we hope you enjoy it whilst learning some new things about thalassaemia! This is a great educational resource to show the children and we are very grateful to Jules Ventriloquist for volunteering her time for this.
- Episode 1 “Why can't Johnny play before his blood transfusion?”
- Episode 2 “Why didn’t Charlie take his iron chelation medication “
Find more of Jules Ventriloquist’s work here:
Youtube: @JulesVentriloquist Website: https://julesventriloquist.co.uk
