Anyone can be a carrier of thalassaemia, but it is most prevalent in individuals who can trace their ancestry to;
South America, Caribbean, Mediterranean, Middle East, Africa, Asia and the Pacific Isles
Thalassaemia is common in these regions because it was believed to be a revolutionary response to malaria
Thalassaemia forms part of the haemoglobinopathies, a group of genetic blood disorders affecting the production of haemoglobin.
People with thalassaemia produce either no or too little haemoglobin.Â
Thalassaemia is inherited from parents; it is not contagious, or a virus acquired from blood transfusions. It is passed on equally by men and women.
Inquiry established to examine the circumstances in which men, women & children treated by NHS in the UK were given infected blood or blood products.
To Identify apparently healthy people who may be at an increased risk of disease or condition, enabling earlier treatment or informed decisions.
All UKTS publications inc. the newsletter, national clinical standards, information on related issues, videos & thalassaemia information in your language
Feel like you’re the only one? Members stories on dealing with thalassaemia.
Thalassaemia is a characteristic of the blood. It is inherited, that is, it is passed on from parents to children, like hair, eye or skin colour. It is passed on equally by men and women. It is not contagious and will not turn into an illness.
There are two main types of thalassaemia: alpha and beta.
This role is open individuals ages 16 and above- some duties will only be open to university students.
During your work experience placement, you will contribute to the flow of office procedures and support the Management Team and the Trustees by carrying out common office duties. In addition, the UKTS will provide experience that enhances your learning prospects and professional development for future employment.
Please note we will specifically set you tasks to match your preferred field.
Human Sciences
Reviewing scientific papers, NICE guidelines research, NHS events in hospitals, making and editing patient leaflets, writing science articles for our newsletters and marketing platforms.
Psychology
Quality of Life data, depression and cognitive and behavioural therapy (CBT)/behavioural change, Acceptance and commitment therapy (ACT) and motivational interviewing.
Business
Operation of a non-profit business.
Law
Department, Legal Policy, International Law, Health Ministers & government, All Party Parliament Group (APPG) Project.
Teaching
Introduction to teaching, planning and delivering sessions and webinars for individuals with thalassaemia and their families. Conduct awareness presentations on behalf of the UKTS.
Computer Science
Front-end and back-end developing, coding, MS Access database.
Photography, Art & Design
Videography, editing and photography, interior design in office, Presentation at events.
Media and Marketing
Promotional material including patient leaflets and event posters, social media platforms including Facebook, Twitter, LinkedIn and Social Media, blogs and website content, magazine articles, emailing newsletters.
Nutrition
Research and design meal plans for those living with thalassaemia.
Journalism
Gain experience in print, broadcast and photojournalism.
What will the UKTS expect from me?
I am interest what are my next steps?
If a work experience placement with the UKTS interests you, please apply by email to: office@ukts.org
Your application must include an up-to-date CV and a cover letter explaining how your experience, skills and knowledge make you suitable for the role.
Volunteering with UKTS gives you the opportunity to:
Why should I volunteer with the UKTS?
Your role will cover an array of office duties from:
That is great news!!
If you would like to find out more or would like to apply for the role, please email to: office@ukts.org
We can’t wait to meet you!
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